Moms always take care of themselves dead last….which is how I managed to go without my synthroid medicine for 10 days this past month…..10 days.
Latest bloodwork? TSH level was 87.18 ….that HAS to be some sort of record….I thought 54 was high……
Hating on myself right now…..
I hate that now I have to go through a website and download a pdf and print it out, blah blah blah….what happened to doctors phoning pharmacies? Leave ME outta the loop, I say!!
What do you do to remind yourself to get the medication?
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hello! found your website during a search for info on orbital decompression surgery. i had my thyroid removed this past March, and just finished a month-long doseage of prednisone for my Grave’s Disease, which didn’t really help all that much. i’ll be seeing another doctor soon to talk about the decompression surgery, and i’m scared!! i’m glad i found your blog so that i’m less scared (although your after-surgery pictures are scary!).
but i digress… i remember to take my Synthroid because i take it with two other (unrelated to my thryoid) pills every morning immediately after brushing my teeth. it’s become such a force of habit; i don’t even think about it anymore. :0)
~gail
U still forget your synthroid???! I have Type 1 diabetes and it’s more likely that I forget about my insulin than my synthroid, ok I may forget like once in a month. hahahah this is kinda funny
Yes….you really have to laugh at what an IDIOT I am. I ran out, and was having issues with my insurance provider/drug plan/computer printer…..I finally threw my hands in the air and walked away….and then started the downward spiral into the abyssssss.
Please Do Not call yourself an idiot, words can be powerful and take your pills.
Self loathing is over…..back to taking meds….brushing self off, and today is a NEW DAY!!
) Thanks 
Hello there. First, I want to comment that you are SUCH a pretty lady! Second, I want to say THANK YOU for documenting your journey. Your photos and “things I wish I was told” are completely selfless giving and I am deeply grateful. I am visiting the Shiley Thyroid Eye Clinic at UCSD in San Diego for my pre-op appt next week and I am a little nervous. I have TED in both eyes, protrusion and lid retraction, worse in my right eye. My eyes were once beautiful and my best feature, and I am told not to expect them to look like that anymore, but to hope that I no longer scare little children (and their parents!). The whole psycho-social impact of this disease is the worst part I think. I have become a hermit and my quality of life is zero. Thank you again. So much.
Hi Beth, Just checking in to see how you’re doing. Wondering if your facial numbness has gotten any better. Also, did the double-vision go away?
I had FROD surgery but still have a ton of aches. I have a follow-up appointment in early January. I don’t think enough FAT was removed and I’m thinking I need another small surgery. Trying to stay positive, this is the only thing you can try to do with TED. Let me know how your doing.
Take care… Tina
I hope the folks who are having trouble remembering to take their meds might find this helpful.
Re insulin-perhaps a diabetic education class might help? At any rate, understanding diabetes, and how it can affect your life, literally, not to mention the incredibly severe and life threatening problems that can occur, might help you. YOu can do this.
Re Synthroid-kinda the same thing. The thyroid is, quite literally, essential for Life. YOu can die without it. Try putting a glass of water by your bed, with a pill box with days of the week. The minute you wake up, anywhere near morning, take it. For proper metabolism, it needs to be taken with water on an empty stomach, no food for 1/2 hour, and no vitamins or supplements for 4 hours after Synthroid. This way, your labs will be a reliable measurement of your TSH, T3 and T4. Get labs at least 2 months apart when being regulated before you get to your “sweet spot” with your dose.
Hope this helps.
Great website! Your “after” pics look terrific! I was happy to hear that most of your orbital decompression surgery was “medically necessary” as opposed to the extra surgery that you had to pay out of pocket for. What were your symptoms that made it a medical necessity? I thought it was all just cosmetic and assumed my insurance wouldn’t pay for it.
Amber Thanks for stopping by!….my bulging eyes had become a health issues for many reasons. First of all, I could no longer wear my corrective glasses, because my eyeballs TOUCHED the lenses!! (not kidding) I was also constantly scratching my eyeballs accidentally when doing daily things (like running my fingers through my hair, etc.) Add in myj almost daily eye aches, and my loss of vision acuity, and you have plenty of reasons to call this a non-elective proceedure.